Support Organizations

• Sophie Lee has run the IBS Tales web site for some 10 years now, as a support site for IBS sufferers. The site contains hundreds of personal stories of living with IBS and reviews of a wide range of treatments. The aim is to help sufferers feel less alone in their fight against IBS and find solidarity and support.
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• The Irish Society for Colitis & Crohn's Disease (ISCC) was founded in 1984 by a group of sufferers and their families. They organize public meetings throughout the country at which lectures are given by doctors, gastroenterologists, surgeons and dieticians.



• MDJunction's Crohn's Disease support group is another online group, one of many for various diseases at MDJunction.com.
  
  
• The Crohn's and Colitis Foundation of America is well known for their support for research and for people with these diseases. They have their own web site now, and it looks great. They have a forum where you can ask specific questions of their panel of doctors, weekly feature articles focusing on issues of living with inflammatory bowel diseases, as either a patient or a caregiver, and news updates. (8/27/96)
  
  
• Advocacy for Patients with Chronic Illness, Inc. is a new not-for-profit organization where you can get free information, advice, and advocacy services from attorneys trained to help you in areas like: getting your own medical records; getting and keeping health insurance; getting private and Social Security disability income; asserting your rights under the Americans with Disabilities Act or the Family and Medical Leave Act; accomodations for students, and lots more.
  
  
• The World's biggest Website for Gay Ostomates based in Manchester in the UK with news, letters, help and information and you can register free to email or meet other 'mates' in America, Canada, Europe, Australia in fact it seems there are gay ostomists everywhere!
  
  
• The Quality Life Association is a non-profit nationwide association aimed at meeting the special needs of the continent ostomate and to educate others in the latest advances in ostomy options.
  
  
• The Crohn's and Colitis Foundation of Canada, has a web site, in French and English, of course. Their Mission Statement is succinct: Find the cure. (1/9/96)
  
  
  
• The IBS Self Help Group aims to provide support for people with IBS, make themselves more visible to the medical establishment, and encourage both medical and pharmaceutical research to make their lives easier.
  
  
• The United Kingdom Adhesion Society (UK-AS) is a National educational non-profit organisation representing men women and children who live each day with a debilitating condition called ARD (Adhesions and their Related Disorders).ÊAdhesions are more prevalent than most people realiseaffecting 1/3 of the UK population (Ellis) although they are still not clearly recognised nor understood and for those suffering, it is often a lonely existence, confused, frustrated, in chronic pain and receiving little or no answers from the medical profession or understanding from family or friends.
  
  
• New Zealand's Crohn's & Colitis Support Group, Inc. has its own web page now. They're a voluntary, non-profit organization. They provide support, advice, and information to interested individuals and patients with these diseases. They also provide educational materials to medical professionals and organisations within New Zealand.
  
  
• And then there's the National Association for Colitis and Crohns in Great Britain, who now have their own web site.
  
  
• The Swiss Association of Crohn's Disease/Ulcerative Colitis has a new web page at www.smccv.ch.
  
  
• There is a homepage by the Associação Brasileira de Colite Ulcerativa e Doença de Crohn (ABCD) - a non profit organization - all in Portuguese. We're trying to help in many forms the patients with Crohn's or UC and to keep the related professionals updated with the latest releases in the world.
  
  
• Grupo Andaluz para el Estudio de la Enfermedad Inflamatori Intestinal (GAEEII): "interesantes paginas que revisan diferentes aspectos acerca de la Enfermedad Inflamatoria Intestinal, Enfermedad de Crohn y Colitis Ulcerosa. Este "web" muestra una Revista en la Red, paginas para afectados, paginas para profesinales de la salud y una gran cantidad de atractivos enlaces..."
  
  
• The Israel Ostomy Association would like to make known their address. Look here if you wish to correspond with other ostomates in that country.
  And the Israel Foundation for Crohn's Disease and Ulcerative Colitis has their own web site in Hebrew.
  
  
• Another English/Hebrew Crohn's site.
  
  
• The United Ostomy Associations of America (UOAA) is an association of affiliated, non-profit, support groups committed to improving the quality of life of people who have, or will have, an intestinal or urinary diversion. They can also be reached at
  United Ostomy Associations of America
  P.O. Box 66
  Fairview, TN 37062
  1-800-826-0826
  www.uoaa.org
  info@uoaa.org
  
  
• In Canada, The United Ostomy Association of Canada, Inc. (UOAC) Online is a volunteer-based organization dedicated to assisting all persons facing life with gastro-intestinal or urinary diversions.
  
  
• The Evansville Chapter of the United Ostomy Association has a web site with an online newsletter and much much more.
  
  
• Die Deutsche Morbus Crohn / Colitis Ulcerosa Vereinigung (DCCV e.V.) hat jetzt eine eigene Homepage. Dort erhalten Sie Informationen ueber die Ziele und die Arbeit unseres Selbsthilfeverbandes. Ausserdem finden Sie hier Hinweise auf Informationsangebote zu Morbus Crohn und Colitis ulcerosa in Deutschland. Die Seite befindet sich noch im Aufbau.
  
  
• Die Österreichische Morbus Crohn-Colitis ulcerosa-Vereinigung (ÖMCCV) bietet Betroffenen und deren Angehörigen Information und Beratung u.a. durch Vorträge, Veranstaltungen, Herausgabe eines Nachrichtenblattes und - seit kurzem - auch auf der ÖMCCV-Homepage im Internet.
  
  

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