Advocacy and Promotional Groups

• The Crohn's and Colitis Foundation of America is well known for their support for research and for people with these diseases. They have their own web site now, and it looks great. They have a forum where you can ask specific questions of their panel of doctors, weekly feature articles focusing on issues of living with inflammatory bowel diseases, as either a patient or a caregiver, and news updates.
  
  
• The IBS Self Help Group aims to provide support for people with IBS, make themselves more visible to the medical establishment, and encourage both medical and pharmaceutical research to make their lives easier.
  
  
• Advocacy for Patients with Chronic Illness, Inc. is a new not-for-profit organization where you can get free information, advice, and advocacy services from attorneys trained to help you in areas like: getting your own medical records; getting and keeping health insurance; getting private and Social Security disability income; asserting your rights under the Americans with Disabilities Act or the Family and Medical Leave Act; accomodations for students, and lots more.
  
  
• GrowingUpIBD.org is an advocacy site dedicated to raising awareness about how IBD affects children all over the world, and the fight to cure/prevent it.
  
  
• The IBD Quilt Project exists to create and enhance public awareness of Ulcerative Colitis and Crohn's Disease via the display of the IBD Quilt panels, and to provide IBD patients, their families and friends a creative outlet to express their thoughts and experiences of living with a chronic disease.
  
  
• Get Your Guts in Gear (GYGIG) is a 3-day, 210-mile bicycle ride from NYC to Saratoga Spgs, NY, to raise money for research, education, and advocacy work toward finding a cure for Inflammatory Bowel Diseases. 2008's ride was a great success! Sign up to ride in 2009. 3 rides to choose from, no waiting!
  
  
• Keymorada Invitational Fly-Spin Fishing Tournament: an annual fishing tournament in Islamorada, FL, to raise money for the Crohn's & Colitis Foundation of America, May 5-8, 2009.
  
  

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